Join TCSF’s 3rd Annual Virtual Run, Roll, & Stroll
Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 3–31, 2025 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.
Registration
– $10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge.
– Shirts & merch available separately in our Bonfire Store!
Why a Virtual Race?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime – whether in your neighborhood, favorite trail, or even on a treadmill.
What’s Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo
Make It Fun
– Invite friends and family to join you
– Dress in purple or race gear and share photos
– Create a team and raise funds for TCSF!
Fundraising
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!
About SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.
Why Support TCSF?
Since 2013, TCSF has:
– Connected with 600 families in 53 countries
– Funded $500,000+ in SCN8A research
– Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
– Awarded $71,000+ in travel grants for families attending the Annual Gathering
– Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
– Reached 90,000+ people with this year’s SCN8A Awareness Day campaign
– Supported caregivers through private groups, grief recovery, and life coaching
– Built community through local Cute Connections meetups
– Honored the memory of SCN8A angels
Your participation makes a difference. We are stronger together!