Jack’s Miracle Mission Virtual 5K

Our sweet, loving, and joyful boy Jack was recently diagnosed with INAD, a rare, heartbreaking, and terminal neurodegenerative disease that is slowly taking away the very abilities that make our boy so special.

Imagine a child reaching developmental milestones, laughing, waving, saying ‘mama’ and ‘dada’, only to have these abilities taken away before their second birthday. That’s the cruel reality of INAD/PLAN. In the last years of their life, children like Jack, will gradually lose the ability to move, eat, or sit up without support, and eventually, even their ability to smile fades. INAD/PLAN is a devastating disease that takes away all a child can do, and when there’s nothing left, it takes the child, too. Sadly, most children don’t make it to their 10th birthday.

But there is hope. Do you believe in miracles? We sure do! In fact, we’re not just believers; we’re creating a miracle, and we want YOU to be a part of it.

Leading experts agree that gene therapy holds promise for treating INAD/PLAN. It has the potential to spare future families from unimaginable pain, as well as provide children like Jack a real shot at fighting back. 

But because INAD is so rare, it doesn’t get the attention or funding it desperately needs. The big drug companies? They’re not interested. It’s just not profitable for them. This is a difficult reality to accept when you’re witnessing your child’s decline every single day  – a nightmare no parent should have to endure. So what do we do? We take action. We’re not just hoping for a miracle; we’re actively working toward it.

The Miracle: The First-Ever Gene Therapy Clinical Trial! 

We’ve already raised $3 million toward our $5 million goal, proof that miracles aren’t given, they’re built through hard work and the support of people who care. 

We are still on track to begin a clinical trial in the first half of 2026. There are critical steps ahead, including FDA approval and significant funding that still needs to be secured, but we’re getting closer every day.

How You Can Help Right Now 
Whether you know our story or simply believe in the power of community, your support means everything.

Donate Today
Be part of Jack’s Miracle Mission — every gift brings us one step closer to hope.

Share Jack’s Story
Help spread his message in your community to raise awareness and power our grassroots fundraising efforts.

Have an Idea to help the mission?
Or want to volunteer or help with an upcoming event?
Email us at JacksMiracleMission@gmail.com — we’d love to hear from you!