Hosted by the Clovis/Fresno EDS Support Group
📅 Date: May 2, 2026
⏰ Time: 9:00 – 11:30 AM
📍 Location: Thorburn Park | 2870 Alamos Ave, Clovis, CA
💵 Registration: $10 per person | $30 per family (up to 6)
🎉 Event Highlights & Activities
1️⃣ Walk & Roll – One Mile (or Less!)
Join our 1-mile loop at your own pace—walk, roll, or wheel! Be part of the EDS Society’s International Walk & Roll Challenge and show your dedication to raising EDS Awareness. Every step counts!
2️⃣ Silent Auction
Cruise the aisles and discover treasures donated by our generous supporters. From quirky finds to one-of-a-kind items, there’s something for everyone!
3️⃣ EDS Artists’ Exhibit
Marvel at art created by local EDS community members. This is your chance to see creativity, resilience, and inspiration come to life. 🎨
4️⃣ Resource & Activity Booths
Explore arts & crafts, info from local providers, giveaways, hydration stations, and interactive activities—something for every member of the family!
💡 What is EDS?
The Ehlers-Danlos syndromes (EDS) are a group of 13 rare connective tissue disorders caused by genetic changes affecting connective tissue. Features vary by type, but common traits include:
Joint hypermobility
Stretchy, fragile skin
Tissue fragility
[Click here to learn more!]
🦓 How Rare is EDS?
- Hypermobile EDS (hEDS): Most common, ~1 in 3,100–5,000 people
- Classical EDS (cEDS): ~1 in 20,000–40,000 people
- Vascular EDS (vEDS): ~1 in 100,000–200,000 people
- Ultra-rare types: Affect <1 in 1 million; some reported in only a few families
Even though some types are rare, the impact on individuals and families is huge, and raising awareness is key!
💛 Why You Should Join
Walk, roll, explore, and connect! This is more than an event—it’s a community celebration of strength, creativity, and support for those living with EDS. Every step you take and every connection you make helps raise awareness and resources for this often-misunderstood condition.
Register today and be part of the movement!